Head of Community Marketing

The role

The Head of Community Marketing will build and lead a community marketing strategy for rare disease patients, families, and caregivers. You will develop campaigns and manage relationships with patient advocacy groups to drive growth.

What you will do

• Define and own community marketing strategy across virtual and in-person channels
• Develop original campaign concepts to activate and grow patient and caregiver communities
• Build and own relationships with patient advocacy groups and foundations
• Test and iterate across tactics including referral, email, partnerships, and paid media
• Track how community efforts influence key metrics like patient acquisition and CAC
• Build scalable, repeatable playbooks for community-driven growth
• Represent Probably Genetic at conferences, fundraisers, and community events

Required qualifications

• 5-10 years of experience in community marketing or community-led growth at a consumer brand
• Track record of building or significantly growing a community with active participation
• Creative instincts for community activation
• Fluency in both virtual and in-person community building
• Comfort using data to guide decisions
• Genuine empathy for engaging a sensitive, high-stakes population
• Strong written and verbal communication
• Willingness to travel regularly for events and partner meetings
• A good person
• Patient-focused and motivated to have a lasting, positive impact on humanity
• Comfortable in a fast-paced, often ambiguous environment with rapid change
• Action-oriented and excited to build a company from the ground up

Nice to have

• Familiarity with the rare disease landscape or existing relationships within the rare disease community

Benefits

• Competitive early-stage equity grants
• Generous Flexible Time off policy
• Parental Leave Benefits (12 weeks for both birthing and non-birthing)
• Hybrid, flexible work
• Pet-friendly office in Downtown SF
• Company-sponsored team lunch every Thursday
• Work from anywhere policy, up to 4 weeks a year
• Regular team retreats
• Medical, dental, vision, therapy, FSA, and 401k

About the company

Probably Genetic uses a data platform to help drug developers and patient advocacy groups develop and launch treatments for patients with severe, complex diseases. The company is a tight-knit group of problem solvers focused on bioinformatics, AI, and drug development.