Associate Director, Patient Advocacy, Skeletal Dysplasia

The role

The Associate Director, Patient Advocacy, Skeletal Dysplasia will develop and execute patient advocacy activities for skeletal dysplasia. This role focuses on Europe, Latin America, and other international markets to support clinical development and commercialisation.

What you will do

• Serve as the primary liaison to patient advocacy organizations in Latin America, Europe and other international markets
• Support the development of the patient advocacy strategy and implement an international patient advocacy plan for skeletal dysplasia
• Represent BridgeBio at patient advocacy and community meetings
• Bring patient and caregiver perspectives into clinical development, medical affairs, regulatory, market access, and commercial planning
• Plan and deliver engagement activities such as advisory boards, patient organization meetings, and community surveys
• Adapt engagement and communications for Spanish- and Portuguese-speaking and other international communities
• Support strategic planning and oversight of advocacy-related budgets
• Work with local and international teams to understand differences in care pathways and access barriers
• Coordinate international grants, sponsorships, advisory engagements, and program budgets
• Share actionable community insights with internal partners

Required qualifications

• Bachelor’s degree required
• 5+ years of patient advocacy or community engagement experience
• 3+ years within biotech/pharma
• Fluency in both Spanish and Portuguese
• Strong professional English
• Demonstrated ability to build trusted partnerships with patient organizations across countries and cultures
• Understanding of patient engagement requirements, healthcare systems, and access considerations across international markets
• Willingness and ability to travel frequently across Europe, Latin America and other relevant geographies

Nice to have

• Advanced degree
• Experience working with rare disease communities
• Experience with skeletal dysplasia or other genetic rare conditions
• Knowledge of German and French
• Familiarity with Europe and Latin American markets

Benefits

• Market-leading compensation
• Remote/Hybrid work model
• Career development through regular feedback, continuous education and professional development programs
• Financial rewards, peer-to-peer recognition, and growth opportunities

About the company

BridgeBio builds bridges to groundbreaking advancements in rare disease and develops life-changing medicines for patients with unmet needs. The company uses a model of pooling projects and promising early-stage research from academia under one financial umbrella.