Associate Director, Patient Advocacy, Skeletal Dysplasia

The role

The Associate Director, Patient Advocacy, Skeletal Dysplasia will develop and execute patient advocacy activities to support clinical development and commercialisation. This role focuses on engagement across the skeletal dysplasia community in Europe, Latin America, and other international markets.

What you will do

• Serve as the primary liaison to patient advocacy organizations in Latin America, Europe and other international markets
• Support the development of the patient advocacy strategy and implement an international patient advocacy plan for skeletal dysplasia
• Represent BridgeBio at patient advocacy and community meetings
• Bring patient and caregiver perspectives into clinical development, medical affairs, regulatory, market access, and commercial planning
• Plan and deliver engagement activities such as advisory boards, community surveys, and educational initiatives
• Adapt engagement and communications for Spanish- and Portuguese-speaking communities
• Support strategic planning and oversight of advocacy-related budgets
• Work with local and international teams to understand differences in care pathways and access barriers
• Coordinate international grants, sponsorships, advisory engagements, and program budgets
• Share actionable community insights with internal partners

Required qualifications

• Bachelor’s degree
• 5+ years of patient advocacy or community engagement experience
• 3+ years within biotech/pharma
• Fluency in both Spanish and Portuguese
• Strong professional English
• Demonstrated ability to build trusted partnerships with patient organizations across countries and cultures
• Understanding of patient engagement requirements, healthcare systems, and access considerations across international markets
• Willingness and ability to travel frequently across Europe, Latin America and other relevant geographies

Nice to have

• Scientific field degree
• Advanced degree
• Experience working with rare disease communities
• Experience with skeletal dysplasia or other genetic rare conditions
• Knowledge of German and French
• Familiarity with Europe and Latin American markets

Benefits

• Market-leading compensation
• Remote/Hybrid work model
• Career development through regular feedback, continuous education and professional development programs
• Financial rewards, peer-to-peer recognition, and growth opportunities

About the company

BridgeBio uses a moneyball for biotech approach, pooling projects and promising early-stage research from academia together to reduce risk and unleash innovation. They build bridges to groundbreaking advancements in rare disease and develop medicines for patients with unmet needs.